INVisible Project: Migraine Edition

A few months back, the U.S. Pain Foundation contacted me about having my 13 year old migraineur, Colton, as one of the featured participants for their first migraine edition of the INVisible Project.

Without hesitation, Colton accepted the opportunity to share his story about the daily struggles he faces as a teen living with the abdominal and chronic migraine disease.

Colton felt it was important to speak up about the stigma that often accompanies a person battling against an invisible illness and how his chronic pain contributes to him missing out on so many school activities that he loves.

As a mom, I couldn’t be any more proud of my son’s courage and strength to overcome so many medical hurdles just to be a normal teen.

As a migraine and headache disorder advocate, I’m honored to have this young man alongside of me, fighting past the barriers of delimnas a patient faces to have a better quality of life while hoping a cure is found for a neurological condition over 37 million Americans live with.

To learn more about Colton and the other migraine INVisible Project participants, visit:

Colton De Keyser and Family

 

 

Common Types of Migraine Headaches and Symptoms in Kids

From February 2014 until the Fall of 2017, I spent countless hours with my son, Colton, in our local ER and with his neurologist searching for a solution to put an end the daily agony his migraine disease was inflicting upon him.

It wasn’t until this spring that the past 3 years of sleepless nights and worrying about the future of Colton’s health, was put to ease. We had finally discovered an effective treatment plan for his abdominal migraines.

My now 13 year old was back to living a better quality of life. He was attending school more often than not and looking forward to becoming a freshman in high school this upcoming year.

In efforts to help educate others about the common types of headaches and symptoms in kids, Diamond Headache Clinic put together this very informative slide show and asked that I share it with my readers.

You can learn more about the Diamond Headache Clinic here.

 

Advocacy Win for Migraine Awareness Month

When the U.S. Pain Foundation announced they drafted a template to submit to the Governor’s offices for Migraine Awareness Month, I gladly offered to help obtain one for the State of Wisconsin.

My past efforts as a Pain Ambassador for Wisconsin was successful during Pain Awareness Month. Twice, I successfully gained Governor Walker’s signature to declare September Pain Awareness Month and had no doubt he would continue showing his support for the Wisconsinites living with this neurological disease that currently has no cure.

Once again, Governor Walker came through for a cause I strongly believe in. He signed the first proclamation declaring June 2017 Migraine Awareness Month throughout the State of Wisconsin.

As someone that was diagnosed with the migraine disease 30 years ago and a mom of a teen that lives with abdominal migraine, this was a huge step for the whole migraine community.