My latest Parenting Team article is about my choice to put my health first. As much as I hate that I’m missing the opportunity to interview Christy Carlson Romano and Thomas Ian Nicolas during today’s Wizard World Comic Con Chicago festivities, I know it’s important to practice self-care.
To read my Today Show post, click on the link provided below:
Thursday, December 7th at 4:30 A.M: Why I woke up this early, without an alarm, is beyond me! I didn’t even fall asleep until a little after midnight. Again, I am not a morning person, so this is very unusual for me.
As I dressed, my body made it known there would be some difficulties with putting on my shoes and tying them. My rheumatoid arthritis decided to make an unexpected appearance today. Just when I thought I had it under control with a higher dosage of methotrexate, the joints in my fingers refused to cooperate.
I wasn’t having it! With everything in me, I finished getting dressed and headed out to do not only one mile, but two. There was no jogging. That would have keep me bed bound the very second, I walked back through the door.
The key is knowing your body’s limitations in that moment.
I knew it would be somewhat impossible to walk, but if I could at pace myself and try to go further than the days before, I’d feel like I accomplished something great. When you live with multiple chronic illnesses, that is a big deal!
4:30A.M. on Wednesday December, 6th- I automatically woke up, thinking it was 5:15 and proceeded to get dressed. Of course, when I had dawned the 3 layers of clothing, that’s when I looked at my cell realizing it wasn’t even 5 o’clock yet!
So, I just went with it and headed outside in the 20° temps with my face mask covering everything, but my eyes. 5 minutes into my jog I came to a complete standstill. Both of my shin’s started to bother me. I haven’t felt pain in that area since I last played soccer in high school (back in 1994 to be exact!)
I didn’t want to stop, but knew jogging would only make things much worse. I forged ahead at a slow, comfortable pace. At least I would be able to do my full distance with less pain as possible. Something is better than nothing!
The moment I stepped foot in my door, I grabbed 2 ice packs and applied them to my shin’s knowing I had to take better care of them or there’d be no Day 4 of training for this gal.
5:30 A.M. on Monday, December 4, 2017 – The sound of my alarm wakes me from my deep slumber. Normally, I’d hit the snooze button several times before deciding to get out of bed. But not on this morning. I was on a mission! One I had mentally prepared for over the past week and decided to finally put this plan into motion.
So, what had me waking up at the crack of dawn without any reservations?
I had finally convinced myself it was time to follow through with something I never saw myself doing and just go for it! I was going to start training to run my very first Miles for Migraine 5K.
Miles for Migraineis a registered 501(c)(3) Non-Profit with the mission of improving the lives of migraine patients and their families, raising public awareness about headache disorders, and helping find a cure for migraine. Miles for Migraine produces fun walk/run events, typically 2 mile walk and 5k and 10k race to raise money for migraine research. We also host youth camps for kids and teens impacted by migraine or other headache disorders.
To be honest I absolutely detest running! I played soccer as a kid and well into my teens, but I ended up being the goalie. I didn’t have to put as much effort into running on the field as my teammates. I only ran laps with the team before and after practice. Which was maybe the equivalent to 2 miles.
Back then I was physically capable of running. I just did everything possible to avoid it. Now, that I want to go out and run, my body could rebel against me.
Since being diagnosed with vestibular migraine, fibromyalgia, rheumatoid arthritis and osteoarthritis, I’ve struggled to keep in shape. And it has nothing to do with me not wanting to workout. Your typical type of exercises like sit-ups, has triggered nasty bouts of vertigo that can go on for hours. Even things like dancing ends with me getting painful fibro flare-ups and hurting for several days.
With all those reasons avoid participating in a marathon, I still needed to make this happen. It is with that motivation I crawled out of bed this early this morning, dressed in 3 layers of shirts, 2 pairs of socks and 1 pair of leggings, and hit the pavement on what would be my first jog through my neighborhood.
As the cold air hit only the parts of my exposed skin, I waded through puddled filled sidewalks against the rain on a mission to get through the first mile without passing out our throwing up. Yes! I’m that out of shape.
My feet moved at a steady pace, one that I was most comfortable with until the rest of my body began to slow the other parts of me down. I was out of breath, but my drive to continue, kept me moving past one business after the next.
Before too long, my house was on the horizon and within seconds I’d be able to set foot through my front door knowing I not only accomplished Day 1 of training, but that I didn’t turn around the second it went from sprinkling to pouring rain.
A minute after walking into my living room, I felt a sense of pride and a whole lot of exhaustion. This was a major milestone for me. One I will look back on and say this is what true dedication is all about.
The small sacrifice I make each morning from here on out, is going to be worth it the moment I cross that finish line. Knowing that I accomplished something I never thought possible will truly be a victorious moment for me.
Each person living with migraine experiences different outcomes when it comes to pharmaceutical and non-pharmaceutical treatments. In this article for Longevity, I share how a procedure called a SPG Block, helps with both my vestibular migraine and cluster headaches.
***Disclaimer: I was originally gifted this product in 2014 for testing purposes.
All opinions are my own***
Over the past 30 years, I’ve sampled a wide variety of products geared towards people living with migraine. Finding relief; even if it’s only temporary, can make a world of difference for a person facing intolerable amount of pain. Whether it was based on the companies claims or testimonies of reliable sources, I’m always up for testing a new item without harmful side effects.
In my online quest to find a reliable and safer alternative to lessen or eliminate head pain, I came across the Catalyst™ Cryohelmet website.
So, what is a Catalyst™ Cryohelmet?
It is a device that applies targeted cold therapy to the head. With proper use your Catalyst helmet may be effective in reducing inflammation from head injuries, lowering body heat, and lessening migraine pain.
I was immediately sold on the idea of a helmet that could lessen migraine pain. Well, that and the part about staying cold for up to 90 minutes while wearing it. For those of us that endure debilitating symptoms during a migraine attack, the very last thing you want to do is move around. Not having to run back and forth to the freezer to replace a depleted gel pack every few minutes would truly be a blessing.
I didn’t waste any time reaching out to the company to share my current situation with chronic migraine and shortly after, received a complimentary helmet to test out.
I felt like a kid on Christmas day the moment UPS showed up with my Cyrohelmet. I didn’t waste any time ripping open that box to see that it included the following:
CryoMax™ Cold Packs in UltraCool™ fabric pouches with Velcro
Insulated carry bag and CryoMAX™ square to keep Cryo-Helmet frozen for hours
I immediately tossed my new helmet in the freezer so that it would be ready the very second I needed it, which would be in the evening.
During the first night of using my Cryohelmet, I was fighting a level 7 migraine attack that included aura, nausea, being lightheaded and my head throbbing non-stop. I slipped the helmet on then tightened it as much as it would get and waited for some type of relief to kick in. Within a half hour, I managed to fall asleep with my helmet still on. 4 hours later I woke up without feeling nauseous or lightheaded and best of all, minimal head pain.
I was quite impressed with my first go around of this product. I loved that I could get out of bed and walk around the house without the helmet falling off my head. I could never get those gel packs with those plastic straps to stay in place for long. I even added extra Velcro straps to those things only to have them fall off the second I tossed or turned in bed.
If day 1 went that smoothly, I wondered how my Cryohelmet would hold up the next time I needed it for migraine relief. The very next day I got my answer when woke up to stabbing pain on the right side of my head with dizziness so severe I couldn’t move without making it worst. Luckily, my daughter had placed the helmet back in the freezer while I slept. It was at the perfect temperature to be effective enough to lessen my head pain to a tolerable state.
Because I have chronic migraine that meant I spent at least 15 or more days dealing with various symptoms. The three symptoms I often experienced during each migraine attack was dizziness, nausea and head pain. My Cryohelmet helped to manage my attacks which meant spending less time stuck in bed and more time doing things with my family. How could you not love a product with those wonderful capabilities?
Once I became well enough to travel long distances again, I discovered that the Catalyst™ Cyrohelmet was airport friendly. I’ve gone through several TSA checkpoints around the U.S. carrying my helmet inside the insulated bag provided by the company with no issues. I’ve even used my Cryohelmet while on the plane. It helped me to relax and experience less head pressure making the rest of the flight more bearable.
Cryohelmet came to my daughter’s rescue after she developed a terrible ear infection. This infection quickly caused her to have a high temperature that eventually skyrocketed to 103 degrees. Not only did the CryoMax™ Cold Packs inside the helmet soothe her ear pain, it lowered her temperature and kept it below 100° the rest of that night. Even our family physician was impressed at the fact the helmet was more effective than the fever-reducing medications she received.
I even began using my Cryohelmet in the 15 minutes leading up to each of my Cluster Headache attacks. I found it helped me to be in a more calmer state of mind. For anyone that has endured these horrific beasts of a headache understands you become desperate and any type of relief is welcomed.
After I learned my son developed chronic migraine, the team over at Cryohelmet shipped a helmet for him to test out. My teen noted a decrease in head pain within the first half hour. In a matter of fact, he prefers to use his Cryohelmet over his migraine abortives. There are no strange side effects with icing your head and it helps him to relax a bit more too.
My son not only uses his Cryohelmet during a migraine attack, he wears it to cool down after football practice and games. Between lifting weights and running plays its easy for any athlete to get overheated. My teen knows the importance of icing his head and now so does his teammates.
Within the last two years, Cryohelmet has graciously donated a total of 5 helmets to my son’s middle and high school football department. Although my teen is currently the only person with the migraine disease on the team, a few of the players discovered the amazing benefits of using the Cryohelmet’s during the hotter temperature days. Just knowing my child and his team mates have a product specifically designed for head injuries on the sidelines, puts my mind a bit more at ease.
What more can I possibly say about a company that has followed my teen and I through our journey of living with migraine and cluster headaches, other than if they put that much thought into two of their customer’s well-being, then imagine how much time and effort went into the development of their line of products for potential customers.