***I’ m a volunteer for the Speak Your Migraine Network that is sponsored by Amgen Inc. & Novartis Pharmaceuticals Corporation. SYMN is comprised of volunteers who share their experiences managing their migraine disorder in order to inspire others and build awareness. All opinions and experiences are my own.***
MY PATIENT PROFILE Age: 41 Diet - No Special Diet In Place Exercise - 2-3 times a week/low impact Years Living with the Migraine Disease: 31 Classification and Diagnosis of Migraine: Migraine with Aura - diagnosed at 10-years-old Vestibular Migraine and Chronic Migraine - diagnosed at age 35 My Migraine Triggers: Changes in the Weather - Incoming Storms, Barometric Pressure & Humidity Changes in Hormone Levels - Menstrual Cycle Food - Onions, Certain Brands of Bacon, Red Wine, & Smoked Cheese Smell - Strong fragrances (Incense, Cleaning Products, Perfume, Cologne, & Burnt Food) Current Migraine Treatment Regimen: SPG Blocks Injections - Once every 3rd week Melatonin - Daily vitamin One or More of the Following are Selected Based on Symptoms: Benadryl Naproxen Zomig Baclofen Zofran Toradol Boost Oxygen Cryohelmet or Cryoscarf Caffeine Other Medical Conditions I’m Currently Being Treated For: Rheumatoid Arthritis Fibromyalgia Cluster Headaches Osteoarthritis
Date of First Aimovig Injection
August 9, 2018
Day 1- I woke up at 3 A.M. to a migraine attack that had me immediately reaching for my Zomig, Benadryl, and Zofran. Knowing my Aimovig shipment was set to arrive by noon, I wanted to make sure I received my first dose that day.
I decided to wait until the afternoon to administer the first injection. I wasn’t worried about giving myself the shot, I was just a little concerned I wouldn’t do it right. I looked over the instructions a million times, okay I really didn’t, but it was at least 20 times.
By the way, I absolutely hate needles! I do have prior experience with giving myself injections. I once carried Imitrex injections with me at all times from the time I was 16 until my mid-twenties. As much as I dreaded having to inject myself during the onset of a migraine attack, I knew that I would feel better within minutes of the medication going through my system.
I currently do weekly injections to manage my rheumatoid arthritis and fibromyalgia. The medication is in a vial and is not premeasured which means I have to measure each dosage. Lucky for me, Aimovig comes prefilled and is in an autoinjector.
I’ll be honest, I thought I screwed up and didn’t do the injection right. I clicked the button on top, but the yellow line didn’t move. I attempted it again until I finally saw the yellow line of the side of the injector pin slowly drop. I waited 30 seconds before removing the injection and noticed quite a bit of blood. More than I had anticipated.
I bled for a good 15 minutes. It wasn’t bad, it just took much longer to stop than any other injection I’ve received in the past. The only issue I had was experiencing soreness in my left thigh for 2 hours post-injection. It basically felt like someone punched me in my leg.
Day 2- I woke up feeling great, but that afternoon my head started to give me grief. Around 5 P.M a cluster of dark clouds moved through and shortly after the rain began. The massive left-sided throbbing and pressure spanning across my entire forehead caused me to sit in the darkest room in the house for the rest of the night. My pain level was between a 5-6. My whole face was numb and my stomach was upset. I used my Cryohelmet, Boost Oxygen, Benadryl, Naproxen and an energy drink to ease the pain to a bearable 2-3. This migraine attack stuck around for 6 hours.
Day 3- I was not expecting to wake up with some female issues that landed me in the ER. With everything going on with my body, there were no unexpected migraine attacks that day. I was not at all concerned that the Aimovig injection played any role in what happened to me that day. The on-call doctor and nurse also agreed with me.
Day 4- After all the excitement from Saturday was behind me, I had a rather relaxing Sunday. I did take things easy as requested by the ER doctor. I’m happy to report no migraine-related issues on this day.
Day 5- The morning started out fine. I got a lot accomplished until the humidity spiked and was at 90%. My head made it known it was not happy which caused me to take a variety of over-the-counter medications to get comfortable enough to finish my daily activities. This particular migraine attack lingered around for almost 8 hours.
Day 6- I had a fairly decent day. No migraine-related issues, but I did have a sensitivity to light all day. I sported my sunglasses most of the day which is nothing new for me. I’m certain it was due to my fibromyalgia acting up and not at all migraine related.
Day 7- My head hated me today. I woke up to excruciating throbbing all over the top of my scalp that only got worse as the minutes passed. I sipped fluids through a straw all day to keep hydrated and wore my Cryohelmet for 6 hours straight. I knew my stomach would only tolerate benadryl and naproxen which I took as directed by my neurologist several times a day. I spent all afternoon stuck in my bed. I was in too much pain to move around. The humidity was 100% which explains why my migraine attack lingered for so long. This migraine attack lasted around 14 hours.
What are my thoughts on Aimovig during week 1?
It’s too early for me to tell. Weather is ALWAYS a factor when it comes to having migraine attacks. No matter what I tried in the past for treatments, my head does it own thing PERIOD! Now I will say this, since starting SPG Blocks in March of 2017 my migraine attacks are not as severe. I only had one ER visit during that time frame for a migraine attack that was a 10+ and caused me to be severely dehydrated. Considering I was making so many frequent ER visits that the staff knew immediately why I was there before I even mentioned what was wrong with me; that’s one hell of an improvement.
My hope is Aimovig will work in accordance with my SPG Blocks to help me to where I am able to have less migraine days and live a better quality of life.