Migraine Again Guest Post

With another school year about to start, I have much more responsibilities to get my teen ready for his Freshman year than my middle schooler.

Not only do I have to attend orientation and more activities as a parent of a high schooler. I have to prepare my son and his new teachers for migraine prevention 101.

With 5 years worth of experience of educating the school’s staff on how my young migraineur has certain treatment requirements based on the severity of each migraine attack, I was more than happy to share my tips with Migraine Again.

To read my guest post on Migraine Again, please click on the link provided.

The Best Ways to Juggle School and Migraine

 

Box Lunch Grand Opening

When my kids first introduced me to the Box Lunch stores, I immediately fell in love with the retailers wide variety of television merchandise.

I mean, how can you not feel all nostalgic when you see FRIENDS, Gilmore Girls, Seinfeld, and Buffy the Vampire Slayer t-shirts with the shows famous taglines?

What really got me on board with this pop culture themed retailer was the fact they give back to others.

Through a partnership with Feeding America, for every $10 you spend at Box Lunch, they will help provide a meal to a person in need.

How awesome is that?

Not only should you consider making Box Lunch your one-stop place for gifts to give to your next family members, friends, co-workers, even your pets; if you ever get the chance to attend one of their grand openings, you’ll be in for some fun prizes.

Ask my teenager who woke me up at 5 A.M. to attend the Fox River Mall Box Lunch’s Grand Opening on his birthday.

He wanted to try his luck at nabbing one of the gift cards valued anywhere from $10-$100.

Not only did we get there 2 hours before the grand opening, we were the very first two people in line.

Was it worth it to be one of the first 50 people in line?

You bet it was!

We each received a gift card valued at $10 to use in the store. Of course, I gave mine to the birthday boy who bought a few of his favorite Funko Pops for his massive collection.

On top of all of that, Box Lunch handed out coupons to use towards online or in store purchases and reusable cloth bags.

A week later, the Appleton store I attended the Grand Opening for, posted on Instagram how they successfully helped fed local residents in need with the help of their shoppers.

SO AMAZING!

Even if you don’t have a Box Lunch store near you, you’re able to go to their website and purchase similar items online.

Remember, for every $10 you spend, you help provide a meal to those in need.

 

 

 

 

 

 

 

INVisible Project: Migraine Edition

A few months back, the U.S. Pain Foundation contacted me about having my 13 year old migraineur, Colton, as one of the featured participants for their first migraine edition of the INVisible Project.

Without hesitation, Colton accepted the opportunity to share his story about the daily struggles he faces as a teen living with the abdominal and chronic migraine disease.

Colton felt it was important to speak up about the stigma that often accompanies a person battling against an invisible illness and how his chronic pain contributes to him missing out on so many school activities that he loves.

As a mom, I couldn’t be any more proud of my son’s courage and strength to overcome so many medical hurdles just to be a normal teen.

As a migraine and headache disorder advocate, I’m honored to have this young man alongside of me, fighting past the barriers of delimnas a patient faces to have a better quality of life while hoping a cure is found for a neurological condition over 37 million Americans live with.

To learn more about Colton and the other migraine INVisible Project participants, visit:

Colton De Keyser and Family

 

 

Common Types of Migraine Headaches and Symptoms in Kids

From February 2014 until the Fall of 2017, I spent countless hours with my son, Colton, in our local ER and with his neurologist searching for a solution to put an end the daily agony his migraine disease was inflicting upon him.

It wasn’t until this spring that the past 3 years of sleepless nights and worrying about the future of Colton’s health, was put to ease. We had finally discovered an effective treatment plan for his abdominal migraines.

My now 13 year old was back to living a better quality of life. He was attending school more often than not and looking forward to becoming a freshman in high school this upcoming year.

In efforts to help educate others about the common types of headaches and symptoms in kids, Diamond Headache Clinic put together this very informative slide show and asked that I share it with my readers.

You can learn more about the Diamond Headache Clinic here.

 

Advocacy Win for Migraine Awareness Month

When the U.S. Pain Foundation announced they drafted a template to submit to the Governor’s offices for Migraine Awareness Month, I gladly offered to help obtain one for the State of Wisconsin.

My past efforts as a Pain Ambassador for Wisconsin was successful during Pain Awareness Month. Twice, I successfully gained Governor Walker’s signature to declare September Pain Awareness Month and had no doubt he would continue showing his support for the Wisconsinites living with this neurological disease that currently has no cure.

Once again, Governor Walker came through for a cause I strongly believe in. He signed the first proclamation declaring June 2017 Migraine Awareness Month throughout the State of Wisconsin.

As someone that was diagnosed with the migraine disease 30 years ago and a mom of a teen that lives with abdominal migraine, this was a huge step for the whole migraine community.

 

 

 

Today’s Parenting Team

 

I decided that my first Today’s Parenting Team article would be about my 13 year old son who lives with chronic migraines because people don’t seem to grasp that his migraines are not “just headaches.”

To read this article, click on the link below to be directed to the Today’s Show website.

http://community.today.com/post/how-to-help-your-child-cope-with-a-debilitating-chronic-illness

 

What to Expect When You’re Chronically Ill and Caring for a Chronically Ill Child

Being a mom to a chronically ill child, is one of the most challenging things I’ve experienced thus far.

With running back and forth between my own doctor appointments and my child’s, I easily became overwhelmed. Stressed out took on a new meaning. I honestly didn’t think I had it in me to be the mother my other two kids deserved.

I was drowning in my own sea of medical issues. How would I ever overcome the unexpected obstacles life was throwing my way, if I was too ill and always in a tremendous amount of pain to handle it?

This new section on my blog will dive into the past 4 years where Continue reading “What to Expect When You’re Chronically Ill and Caring for a Chronically Ill Child”

What to Expect When You’re Chronically Ill

This new section on my blog will be where I post about the delimnas I’ve faced these past 5 years as someone living with several chronic illnesses.

Here are just a few things I’ll be opening up about:

  • Financial Strain on the family
  • Relationships
  • Loss of Independence
  • Medications and the Dangerous Side Effects

 

 

 

Lego® Batman Build Event


My kiddos and I could not be any more excited about the release of The LEGO® Batman Movie.

My youngest already has 3 of the LEGO® sets from the movie and still wants to get the whole series!

My 13 year old is mostly looking forward to the characters that will be making an appearance in the movie.

And I am psyched about getting spending quality time with my family while relaxing in the Marcus theater’s dream loungers.

Since we have to wait two more weeks to see Batman in action, we are going to head out to Barnes & Noble this Saturday for their LEGO® Batman Build Event.

Starting Saturday January 28th and continuing February 25th and March 11th, celebrate the release of the LEGO® Batman Movie. At each event, kids can collect two limited edition trading cards (while supplies last) featuring characters from the movie. The cards collected at all three events will unveil a special scene. Enjoy giveaways, make and play themed moments with LEGO® bricks and blocks plus much more.

Let me tell you, when Barnes & Noble does giveaways, their prizes are awesome!

Both of my boys have won prizes from different events. You’d think they hit the lottery! The Doctor Who prize pack and the Batman VS. Superman: Dawn of Justice movie posters fit perfectly with the other superhero decor in their bedrooms.

For more details about the LEGO® Build Event and to find our what locations are participating, check out Barnes & Noble’s website.